Chapter 2017 {Page 25}

**not a happy post**

So much has happened in the past few days (not to my immediate family at this moment) but to the country and really, the world. I don’t know what to say about any of it, because no matter what, it will piss someone off.

I guess the only thing I do want to say is: Lauren’s life, health, education and future are going to be directly affected, and soon. Lauren, and millions of others with special needs/disabilities. They (and their families) have to fight so hard, every single day to prove they belong in the world – that they are human beings with feelings and value. They have to prove they deserve rights, just like everyone else.

Beth Hardinger Blog

It’s really all I think about these days. I don’t sleep much anymore. How can I? When your child is threatened, how do you concentrate on anything else?

And for people who tell me not to worry about the future – back off. I’m doing the best I can with what I’m given. I have to worry about Lauren’s future – people with disabilities, their futures require planning. You start planning early. You have no choice. I can’t just hope Lauren will find her way when she moves on to middle school in a year and a half, and the teachers will treat her with respect and follow her IEP.

You may not be directly affected by the changes in the country, but millions of others are. And we’re terrified. We feel helpless, especially those of us without a supportive community.

Maybe tomorrow will look brighter. But I think those days are gone.

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